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| A Disease Concept for the 21st Century |
| Columns - History | ||||||||
| Saturday, 31 March 2001 | ||||||||
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In the first three articles in this series, we reviewed the history of the disease concept of addiction in America from its birth in the 18th century through its collapse, rebirth and rising prominence in the 20th century. We also noted the emergence and growing stridency of an addiction disease debate and isolated the major points of contention between addiction disease advocates and critics. In this final article, I cast aside the role of historian and offer my own conclusions and proposals regarding this concept and its future.
Toward a better disease model
When Alcoholics Anonymous was first publicly criticized in a
1963 magazine article, AA cofounder Bill Wilson responded in the AA Grapevine.
Rather than attacking the author or defending AA, Wilson took the position that
AA members should view critics as benefactors and that AA should use criticism
lodged against it to self-assess and improve AA. Those of us who have
long-professed that addiction is a disease would be well-served by Wilson's
example. Rather than defending an overly rigid concept, it would be better to
acknowledge the weaknesses of the disease concept as historically constructed
and to reformulate a disease concept that is more clinically and culturally
dynamic and more scientifically defensible. Improving the addiction disease
concept stands as a viable alternative to the critics' strident call for its
abandonment.
William Miller warned in 1993 that the current disease model
was inadequate to explain or resolve the wide spectrum of alcohol-related
problems. This article builds on his proposal to construct a modernized disease
concept within the rubric of a public health approach to disease prevention and
intervention. Ban approach that provides a balanced focus on the agent (the
drug), the vulnerability of the host (the drug consumer) and the
(physical/cultural/legal) environment.
The new disease concept will forge consensus on a language
that can be used to differentiate types and intensities of alcohol- and other
drug-related problems. Any conceptualization of such problems must contain a
core set of words and ideas that can simultaneously 1) help individuals
construct or change their relationship with psychoactive drugs, 2) guide
professional helpers in organizing and evaluating their interventions into
drug-related problems, and 3) help communities and societies understand and
manage these problems in the aggregate.
E.M. Jellinek, in his classic 1960 text, noted that the debate
over the disease concept was plagued by too many definitions of alcoholism and
too few definitions of disease. The continued proliferation of terms and their
unclear meanings (alcohol/drug dependence/ abuse/addiction/problems, chemical
dependency, substance abuse/misuse, disease, illness, sickness, malady,
condition, habit) has created a virtual Tower of Babel within the on-going
disease concept debate. To transcend the unproductive rhetorical excesses of
this debate, a basic vocabulary of words and meanings must be forged.
One of the first definitions needed is that of disease. The
addiction field must follow the rest of medicine in moving away from the
depiction of disease as an entity to an understanding of disease as a metaphor.
"Disease" is a word and an idea used to convey substantial, deteriorating
changes in the structure and function of the human body and the accompanying
deterioration in biopsychosocial functioning. To suggest that disease is a
metaphor does not diminish the devastating reality that the term depicts, but it
does suggest that this reality may constitute a process rather than a "thing."
The new disease concept will shift from an alcoholism model to
a more encompassing addiction model. It will define the boundaries of its
application to particular drugs, declaring the concept's relevance or
misapplication to tobacco, opiates, cocaine and other stimulants, cannabis, and
other licit and illicit psychoactive drugs. It will incorporate the latest
advances in biomedicine to answer the question of whether personal vulnerability
to addiction is drug-specific, drug-category specific, or expansive across a
range of substances and experiences.
The new disease concept will carefully map its conceptual
boundaries, defining the conditions and circumstances to which it should and
should not be applied. The concern here is that a concept can be diluted,
distorted, overextended, commercially exploited and over-used to the point that
its utility is destroyed. The history of the concept of "co-dependency" provides
a vivid example of what can happen under such circumstances. If the concept of
co-dependency taught us anything as a field it is that when a concept begins to
be applied to everything, it ceases to have meaning applied to anything.
The area of greatest trouble is the application of the concept
of addiction and addictive disease to include process addictions, harmful
relationships with food, relationships, sex, work, gambling, etc.. It is the
"etc." that is particularly problematic. Americans already speak of being
"addicted" to everything from bowling to television shows, self-describe
themselves as "chocaholics," "shopaholics" and every other kind of "aholic," and
apply the term disease" to everything from violence to the use of profanity. The
new disease concept will carefully re-establish and then guard its boundaries to
prevent its continued over-extension and financial exploitation. To draw this
boundary will require nothing short of defining the very essence of addiction
and its roots.
The new disease concept will place alcoholism/addiction within
a larger umbrella of alcohol- and other drug-related problems. The consumption
of alcohol and other drugs contributes to a large spectrum of personal and
social problems: fetal drug exposure, drug-impaired driving, drug-influenced
crime and violence, and underage and binge drinking, to name just a few. An
undefined portion of these problems are not the product of alcoholism and other
drug addictions, do not constitute "disease" states, and should not have a
traditional disease model of intervention applied to them.
The new disease model will seek to delineate alcohol and other
drug "problems" from alcohol and other drug "addictions" and distinguish the
prevention and intervention strategies that should be applied to each. It will
seek to clearly specify the conditions that must be present to declare the
presence of "alcoholism" or "addiction" and further argue (in the tradition of
E.M. Jellinek) that an AOD problem be declared a "disease" if, and only if
certain specified conditions are present.
The field of professionally directed addiction treatment
cannot have it both ways. It cannot (without great harm to itself and its
clients) continue to clinically define alcoholism and addiction in narrow terms
and then, for reasons of professional and institutional gain, misapply this
narrow model to an ever-expanding array of drug-related and non-drug-related
problems. If the field continues to rely solely on a narrowly prescribed
addiction intervention model, then ethically it must refuse to treat the wider
pool of individuals with AOD problems for whom this model is inappropriate and
potentially harmful. If the field embraces the larger spectrum of people with
AOD (and other) problems within its purview (which it has), then it must
significantly expand its potential treatment goals and intervention technologies
(which it has not).
The new disease concept will acknowledge the differences in
these populations and create a wider menu of treatment goals and technologies
that can be selectively applied to these different but overlapping populations.
The new disease concept will portray addiction as a cluster of disorders that spring from multiple, interacting etiological influences and that vary considerably in their onset, course and outcome. This refined concept will incorporate rather than deny existing research on etiological factors, pattern variability and outcome variability. The new disease concept will create taxonomies that delineate the clinical subpopulations that make up these divergent patterns and will move to a much more sophisticated approach to differential diagnosis and individualized treatment/recovery planning. To move the disease concept in this direction is not a call to break tradition but a call to return to earlier traditions, from the 19th century inebriety specialists understanding of "diseases of inebriety" to Jellinek's "alcoholisms." The new disease concept will, for example, proclaim within its framework that:
Determining just how common or how rare these variations are is an important question, one that needs to be moved from the arena of rhetorical debate to the arena of research. The 'truth" on many of these contentious issues will be found in the space between the polarized positions of the most rabid disease advocates and critics. ComorbidityThe new disease concept will define the complex inter-relationships between addiction and other acute and chronic disorders and champion integrated models of care for the multiple problem client/family. Alcoholism and other addictions can result from and contribute to other diseases. These comorbid conditions interact synergistically to debilitate, compromise recovery and shorten lives. The longer addictive disease is active, the higher the risk for collateral disorders. A major challenge for the new disease concept will be to define the interaction between addiction and other disorders, discover strategies to prevent the onset and severity of comorbid conditions, and generate principles for the co-management of these conditions. Multiple problem clients have become the norm in addiction treatment agencies across the country. These clients, many with long and complicated service histories, have not fared well in America's categorically segregated service system. They frequently report histories of service exclusion, service extrusion, premature service disengagement, repeated episodes of relapse and treatment re-engagement, and even treatment episodes that were more harmful than beneficial. The new disease concept will provide a framework through which the needs of these clients can be met by strategically integrating the resources of multiple formal (professional) and indigenous helping institutions. Role of human willThe new disease concept of alcoholism/ addiction will define the role human will and personal responsibility play in the onset, course and outcome of AOD problems and of alcoholism/addiction. Are alcoholics/addicts responsible moral agents who perpetrate acts of mayhem on themselves, their families and their communities, or are they victims of a disorder that undermines their values and best intentions? What is the effect of the answer to this question upon the individual alcoholic/addict and upon the society in which he or she resides? The new disease concept will provide a more accurate and nuanced answer to this primary question, not in terms of whether addiction is or is not a choice, but by depicting how the freedom to use or not use varies across clinical populations and within the same individual across the stages of drug use, addiction and recovery. It will be helpful to plot the degree of freedom one has to use or not use across the stages of problem development and problem resolution. Alcohol/drug use, addiction and recovery are best portrayed not in terms of complete control and complete lack of control but in terms of degrees of diminishment or enhancement of voluntary control. Once educated, each person has a responsibility to:
Most chronic diseases are characterized by risk/resiliency factors related to daily diet, work habits, exercise, sleep, stress management, psychoactive drug consumption, exposure to environmental toxins, specifically contraindicated (high- risk) behaviors, personal beliefs, and social support. The new disease concept will emphasize the responsibility of the individual to actively manage these global health issues as an integral part of the daily process of long-term recovery. The variety of recovery experiencesThe new disease concept will celebrate the variety of styles and pathways of long- term recovery management. Ernest Kurtz, the noted author of Not-God: A History of Alcoholics Anonymous, recently observed that if he were to write a follow-up to his original work, he would entitle it "Varieties of AA Experience." What has become clear in recent decades is the enormous variety of ways that people are resolving AOD-related problems. This reflects not only the growing varieties of 12-Step group experience that Kurtz suggests, but the equally significant proliferation in alternative support structures, alternative treatment approaches and solo (without aid of treatment or mutual aid) recovery experiences. What will flow out of the new disease concept is not "a program" that everyone goes through, but a menu of professionally directed interventions, recovery support services, mutual-aid groups, indigenous healers/institutions, and self-engineered (potentially manual-guided) programs of recovery that individuals can select for personal and cultural fit. The challenge for the treatment professional will be to remain continually aware of the evolving choices on this menu and to help match menu items to the needs of their individual clients. Rather than be defensive about the fact that people are finding a variety of ways to resolve AOD problems, it is time we celebrated the growing diversity of the culture of recovery. Recovery managementThe new disease concept will view addiction as a chronic rather than acute disorder and incorporate the principles of chronic disease management that are being used to understand and manage other chronic disorders. Alcoholism and other addictions have long been characterized as chronic diseases, but their treatment has been marked by what is essentially an acute care model of intervention. All too often we respond to life-impairing and life-threatening episodes of chronic addiction disease with sequential episodes of brief, expensive, emergency-oriented interventions that do little to alter neither the overall course of addiction nor its personal and social costs. The new disease concept will focus on interventions that strengthen and extend the length of remission periods, reduce the number of relapse events, reduce the intensity and duration of relapse episodes, and reduce the personal and social costs associated with such episodes. It will achieve this by applying to the management of addiction recovery not just the new breakthroughs in addiction science, but also the new principles and techniques that are being successfully used to manage other chronic diseases. Viewing recovery through this much longer time lens will require that the helper-client relationship move from a brief, expert-focused model of intervention to a partnership model of long term disease/recovery management. A final wordThe addiction disease concept will continue to face two quite different litmus tests:
Answering these will require achieving some degree of consensus as a professional field and as a society about how we know something is true and how we know whether something works, tasks not as simple as they might seem. That the concept of "disease" has provided alcoholics an organizing metaphor for personal change and provided America a framework for organizing a response to her alcohol-related problems is undeniable. However, there is still a question of whether additional or alternative metaphors would reach a larger number of those suffering from severe AOD-related problems and provide a more effective framework for organizing broad social responses to the prevention and management of AOD-related problems. I believe that the disease concept of addiction has "worked" at personal, professional and community levels within particular historical periods and within particular cultural contexts. However, it is unlikely to survive as the dominant "governing image" for AOD problems unless it is able to continuously incorporate the following:
Nowhere is the gap between clinical research and clinical practice wider nowhere are there more contradictions between treatment philosophies and treatment practices than in the application of the disease concept to the treatment of AOD problems. The fate of the disease concept rests in great part on closing these gaps and resolving these contradictions. William L. White, MA, is a senior research consultant at Chestnut Health Systems and the author of Slaying the Dragon: The History of Addiction Treatment and Recovery in America. This article is abstracted from a work-in-progress entitled "AA Disease Concept for the 21st Century." This article is published in Counselor Magazine, April 2001, v.2, n.2, pp. 48-52.
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